SecAppDev 2022 Lecture Details

Privacy and ethics in secondary use of sensitive data

Griet Verhenneman
Monday June 13, 09:00 - 10:30
Short description

Anonymisation versus pseudonymisation, public interest versus commercial interest, opt-in versus opt-out, and the pull versus push approach to transparency. This session explores the limitations, but also provides solutions.

Abstract

The processing of health-related data is strictly regulated, and so is the secondary use of such data. Yet the demand for using data for scientific research and secondary purposes is high. Therefore, it is crucial to balance the data subjects' fundamental right to the protection of their privacy and their personal data with the need to support data-driven innovation.

This session explores the do's and don'ts when processing health-related data for scientific research and secondary purposes, based on policies developed by multidisciplinary teams at the University Hospitals Leuven.

Key takeaway

Transparency, pseudonymisation and, depending on the context, the right to opt-out should be your keys to the (re)use of personal health-related data.

Content level

Introductory

Target audience

Anyone looking for suggestions on the implementation of data protection law in secondary use.

Prerequisites

Knowledge on the basic principles of GDPR is helpful, but not required

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Griet Verhenneman

Griet Verhenneman

Data Protection Officer - Research Fellow, University Hospitals Leuven, KU Leuven - CiTiP

dr. Griet Verhenneman is a legal expert on privacy, data protection and e-health. She combines expert theoretical knowledge with a DPO’s hands-on experience of implementing data protection and privacy in a challenging environment. In her position as Data Protection Officer at UZ Leuven, she brings data protection into practice. In her position as Research Fellow at the Centre for IT and IP Law KU Leuven (CiTiP) and Lecturer in the Master program IP & ICT Law she continues her academic work on the legal implications of ICT-driven evolutions in our society.

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